How to Speak Up for Your Health
Role Models Share Their Stories
Self-Advocacy Videos
Self-advocates shared their healthcare stories in brief videos, sharing examples of:
- How they advocate for their health care
- How they identify their health care needs
- How they know their rights when it comes to health care
- How they prepare for health care visits
- How they make decisions about health care by themselves and with support
Paavi
Meet Paavi! She shares her tips and strategies for preparing for health care visits and making health care decisions.
Amber
Meet Amber! She discusses the importance of being an advocate for yourself and others. She also shares her experiences as a Deaf individual.
“I’m looking forward to helping the Deaf community have access to a world that was intended for hearing people.”
Karla
Meet Karla! She shares how she navigates health care as person with vision impairment. She also shares how she uses assistive technology.
Cody
Meet Cody! He shares his tips and strategies for preparing for health care visits and making health care decisions.
NEW! Self-Advocacy Resources
This spreadsheet is filled with resources on healthcare self-advocacy for people with disabilities.
- Use the bottom tabs to access different spreadsheets. The tabs are named by the language the resources are provided in, with the following titles:
- English Only Resources
- English/Spanish Resources
- Spanish Only Resources
- Columns in each sheet are divided based on:
- Resource Title: This is the title of the resource
- Description: short explanation of resource
- How to Access: resource (link) and further directions if needed
- Key Topic: key category or topic of resource
- Primary Audience for Resource: the column tells you if the resource is directed towards self advocates, supporters or health care providers
- Details: key information of resource
- Last updated: date the resource was published or most recently updated
- Resources are organized on the spreadsheet by type as indicated by the color coding.
- Yellow = Toolkits and Guides
- Blue = Trainings
- Green = Videos
- Purple = Research Articles
- Red = Government & State Websites or Services
OPEN RESOURCE SPREADSHEET IN A NEW WINDOW
About
In the 2020 Arizona Developmental Disabilities Planning Council’s Arizona Priorities Survey Report, individuals with intellectual and/or developmental disabilities (I/DD) identified as a top priority “for medical care providers to talk with me in a way I can understand.” More than 75% of these respondents indicated they “want” or “really want” help in stopping others from ignoring their needs.
This project developed short videos and compiled learning materials in collaboration with people with (I/DD) about self-advocacy in health care.
Contact
If you have any questions about this project, please contact:
Celina Urquidez at celinau@arizona.edu
The Arizona Developmental Disabilities Planning Council is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $1,500,930 with 100 percent funding by ACL/HHS. Council efforts are those of the grantee and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government. The views expressed in written materials or publications and by any speakers and moderators do not necessarily reflect the official policies of the ADDPC or the Administration for Community Living, the U.S. Department of Health and Human Services, nor does mention of trade names, commercial practices, or organizations imply endorsement by the U.S. Government.